Haemophilia in Aotearoa New Zealand

Name: Haemophilia in Aotearoa New Zealand
Brand: Taylor & Francis

Taylor & Francis

Haemophilia in Aotearoa New ZealandMore Than A Bleeding Nuisance\nAuthor(s): Julie Park, Kathryn Scott, Deon York, Michael Carnahan\nFormat: Paperback\nPublisher: Taylor & Francis Ltd, United Kingdom\nImprint: Routledge\nISBN-13: 9780367662349, 978-0367662349\nSynopsis\nHaemophilia in Aotearoa New Zealand provides a richly detailed analysis of the experience of the bleeding disorder of haemophilia based on longterm ethnographic research. The chapters consider experiences of diagnosis; how parents, children, and adults care and integrate medical routines into family life; the creation of a gendered haemophilia; the use and ethical dilemmas of new technologies for treatment, testing and reproduction; and how individuals and the haemophilia community experienced the infected blood tragedy and its aftermath, which included extended and ultimately successful political struggles with the neoliberalising state. The authors reveal a complex interplay of cultural values and present a clos.